Silicon Republic interviewed me about technology & disability and the work we do. They accurately quoted me: “Ableism is the sauce we’re all marinated in,” so basically my career has peaked. 😀
A note: I had the great pleasure of participating in a panel discussion as part of the Becoming Interplanetary Event at the Kluge Center of the Library of Congress I’m still buzzing from the amazing range of new ideas and cool stuff that this meant. The event consisted of 3 panels and 3 performances. The amazing Lucianne Walkowicz organized the event – an event that’s even hard to describe. Below, I’m adding some notes – marked up with links out – that I brought with me to the panel. “The Right Stuff” asked (well, Lucianne actually did the asking!) panelists Brenda Child, Brian Nord, Chanda Prescod-Weinstein, and I about who has the right stuff for becoming interplanetary, how narratives shape these ideas about space, and how the meaning of what stuff is right is evolving or being challenged. (I will link here when the captioned session hits the interwebs.)
Personal Background: I work on narratives from the disability community that challenge our usual notions about technology and body – specifically I am interested in the idea of technoableism. (I have written a bit on this topic of Logic Magazine earlier this year.)
Technoableism is the idea that our narratives about technology and disability often reinforce ableism, though they are often dressed up in the language of empowerment. We talk about fixing people and giving them (disabled people) new powers with technology – often in the absence of consulting those same folks about what they might actually want and how they think about their bodies.
Specific to thinking about The Right Stuff and participating in this panel, I’ve been thinking in 3 different veins, though I didn’t list them this way at the panel:
- Historical Prelude: Including disabled and Deaf people in space research has already happened – but with our bodies being seen as useful for research purpose only without considering people in our communities as candidates with “the right stuff.”
- Read about the Gallaudet 11: Deaf men were recruited by NASA from Gallaudet University for training around motion sickness in space since some types of deafness correspond to difference in the feeling of motion sickness. Despite superior performance when it comes to not getting motion sick, these research subjects weren’t recruits for actual space travel. They were as a reference class to get findings to help hearing people go to space.
- Contemporary Artistic Reflection: Artistic and creative work on #CripsInSpace in the Deaf Poets Society and other disability narratives, poems, and memoir that reflect on space offer reasons to think that the adaptability, creativity, and spatial and planning prep that disabled people already engage in could provide good reason for opening space exploration to us. Here are some links related to #CripsInSpace
- Everyone in space will be disabled, if they are not yet already. And people might want to be disabled to be in space. Examples include:
- Wheelchair Users & Movement in Space: CripsInSpace and Sam de Leve have pointed out how wheelchair users and other mobility device users are often use to figuring out how to navigate spaces in a more creative way that involves a lot of pushing off in ways that nondisabled people rarely experience. (As a person who loves her rollator, I can confirm that the beauty of pushing off an moving in this way is wonderful – and something you get better at doing the more time you spend on wheels.)
- Some medical conditions being better: People with certain medical conditions might make better space travellers under particular conditions, either because they’d do better in lower gravity or because their bodies can tolerate high g’s. For instance, people with hearts closer to their brains are less likely to pass out in high g’s since blood can make it to the brain faster. People with some bone conditions might do better where their skeleton is less compressed by gravity over time. (In individual conversations with folks, it’s always surprising to me how many people have thought about how their bodies would do in space!)
- It’s not just physical disability, though: Mental health in space: We already know that Seasonal Affective Disorder has higher incidence in places where people get less light from the sun. Imagine the high incidence of SAD we might see from people travelling away from the Earth. It might make sense to send people who have already learned how to manage their mental health here on Earth if we hope for good space travellers who have a track record of learning and adapting to various conditions already.
- Cyborgs/Cripborgs* wanted — there are many examples of people who have medical devices and monitors installed that would make it easier to do some things in space. My fave example is from my pal Mallory Kay Nelson: people with ostomy bags will have a much easier time with the current pooping in lower gravity situation. Read about the history of pooping in space while you consider this.
- Even if we aren’t sending disabled people out, we’ll be bringing disabled people home or sending them further out. We’ll have new disabilities in space, and people who are nondisabled here will become disabled through the environmental changes in space – gravity and radiation being the two most anticipated, but in other ways too.
I want to add that it’s discriminatory + ridiculous to populate our ideas about space and who has “the right stuff” with only nondisabled people. The fact is that some disabled people may have an edge as space travellers — and what our bodies will need to do and become in space is far from the niche requirements set here on Earth. Even if we start out nondisabled and recruit for peak abledness, the toll of space on human bodies will bring about disabilities we have yet to imagine. Considering the future of space travel in any serious way requires thinking about being and becoming disabled, about accepting disability as a normal part of life – one that will follow us to the stars.
*’Cripborgs’ is a great term used by Bethany Stevens. Mallory Kay Nelson, Bethany Stevens, and I have a publication talking about that term (and others) that will come out Spring 2019 in Catalyst.
Virginia Tech’s College of Liberal Arts and Human Sciences has featured a story about the NSF CAREER grant associated with Tech & Dis on their website this week:
So happy to have this shared with the community. Over the next 5 years, I will have a rotating group of student researchers engaged in work on disability narrative, tech pedagogy, and telling better stories about technology and disability.
By Chris Wakeley
Work by Cara Boim
Former Tech & Disability student Tim Pote and I are interviewed as part of Rose Eveleth’s Flash Forward Podcast, this episode entitled “Enter the Exos”. Also included among interviewees are Bill Peace and Kim Sauder, two folks we read in class when we discuss exoskeletons.
Link here: Flash Forward Podcast, Enter the Exos
by Maggie Rudnicki
by Maggie Rudnicki
Sex education is an incredibly important part of any child’s education and will shape their beliefs and experiences going into sexual maturity. The urge to reproduce is one of our most basic biological imperatives that goes back to Darwinian evolution – we are driven to survive and reproduce. It is, therefore, of great importance for everyone to understand how their bodies work and how to take care of them. Sex education should be place for young people to learn about puberty, reproduction, gender, sexuality, sex, the benefits and risks of sex, reproductive health, and interpersonal relationships. Unfortunately, many people across the country do not have access to comprehensive sex education. Individuals with disabilities are particularly affected by this. Society has trouble viewing people with disabilities as sexual and thus excludes them from sex education. When people with disabilities do receive sex education it is often an inaccessible curriculum that doesn’t fit their learning style or body. Better sex education for people with disabilities can have numerous benefits such as protection from sexual assault; better hygiene, social skills, and body positivity; and a more fulfilling sex life.
by Hannah Butcher
Are you really having an anxiety attack, or are you just having a bad day? It can’t be that bad. Continue reading “OpEd – Anxiety and College Students: An Invisible Illness?”